Posts Tagged ‘death’

30
Apr

Why I Stopped Writing…

crying woman

Warning! Grab 2 of your favorite beverages first. And maybe a box of tissues.

Have you missed me? I’ve missed you! It’s time to get back to what fuels “my fire” and to once again, do “self-therapy” through writing. Honestly, that pretty much sums up the majority of what I write—my way of trying to fight through the “darkness” that life can sometimes bring and still come out on the other side to find joy and blessing.

So, what kept me from writing for so long? On December 11th of last year, just as I was getting over not having to give myself stomach shots anymore and not having to let the vampires suck me dry for blood tests, my older brother sent me a text message. We are not what I would call “frequent texters” even though we live a mere two hours from each other. So, imagine my shock when my normally very healthy brother sent me this: “Apparently, it’s my turn now. Being admitted to hospital. Will need a transfusion and they’re trying to figure out why. Probably related to stomach problems. Tell you more as I learn more. Looks like a one day stay at this point.”

At Thanksgiving, my brother had complained that, for the last few months, he was having to eat more slowly and avoid “thicker” foods. He wasn’t complaining because he was losing weight—something he had been struggling to do for several years. We just thought it was an “aging problem.” My brother lives alone and has no family of his own, so since I am his closest relative, I knew my assistance might be needed if he didn’t get out of the hospital after 1 day.

The next day I got an even more shocking text: “They found cancer; cut some out and sent for biopsy; chest & stomach CT scan this PM; oncologist on board & will see me tomorrow with a game plan.” Noooooooooooooooo. This can’t be happening—my brother was just pronounced absolutely healthy by his doctor in late summer.

My life changed instantly. It went from amateur-aspiring-writer-mom-volunteer to caretaker. It also changed for our oldest brother, who had recently retired in Louisiana, and also had no family of his own. We knew we were my brother’s only “back-up” crew. We flew into action as our family typically does. My children helped when they could, despite really busy schedules. The world seemed to pray for him.

The next few months were cram-filled with a myriad of doctor’s consultations (so many that I lost track of all the doctors he saw), tests, nurses (such a new fixture in his life that I became good friends with a fair number of them), technicians, drugs (so potent that special kits and gowns are packaged with them to prevent them from getting anywhere other than where they needed to go), and…sheer and utter panic.

My researcher nature and past history with other cancer-afflicted friends has taught me where to go to find reliable information on the various kinds of cancer. My brother was diagnosed with esophageal cancer, one of the few cancers that still has a high “death rate.” Even if my brother fought valiantly and managed to survive the treatment (no small feat—trust me!), he probably was not going to live to see 70 (He was already 63.). The panic physically surfaced with this realization and I had to up my dosages on several of my heart medications, as a result.

After a series of complications (and I have the most detail-oriented, instruction-following brother on the planet) beyond my brother’s control and ridiculous amounts of pain and discomfort, the brother who fought with everything within him finally said, “I’m done” in late February. I found this out through my other brother in a tearful phone call. Again, I was shocked. This can’t be over this fast. My eldest brother asked me to come back to the hospital the next day and help him with making arrangements for hospice care. I did so and became extremely angry with the doctors caring for him. It was so obvious to me that my brother couldn’t fight this anymore and was extremely fatigued and yet, doctor after doctor insisted on trying to talk him out of his decision. While I didn’t want to lose my brother, I also didn’t want to see him suffer any more than was absolutely necessary. They were prolonging his misery! Despite his fatigue and pain, he asked intelligent questions to rule out any possible avenue that could lead to a faster, fairly positive result. But, each time he posed a different scenario than what the doctors had already proposed in December, he was told that wasn’t possible. So, he kept insisting that his decision to quit treatment was final. At one point he said, “It’s time for me and my family to move on.” While he waged a verbal war with them, my eldest brother and I visited two hospice facilities on nearly opposite sides of the Dallas-Fort Worth metroplex in a matter of a few hours, despite rush hour traffic and a wide array of DFW highway construction zones.

The first place did not impress us at all—it was dirty, had an annoying alarm on the entrance door every time it opened and was housed in an assisted living facility. The second was housed in an older section of a very clean hospital. The staff there were friendly, patient and quiet as they showed us around. There was a gentleman quietly playing acoustic guitar in the hallway. Since our brother used to dispel his stress levels with playing acoustic guitar and was quite entertaining to hear when he brought said guitar to family events and get-togethers, we knew this was God telling us where he was supposed to spend his final days on earth.

Within a matter of 24 hours, he was there. Hallelujah! The hospice staff quickly addressed all of his discomfort and he finally was able to rest many hours of the day without incessant interruptions from doctors, nurses, vampires, technicians, custodial staff and nutrition personnel. Being the executor for our parents and one of our aunts, my weak brother, the eternal accountant, began dictating how to get into his computer and personal files so that my eldest brother could pay his household bills and take care of settling the estate, giving numerous pointers along the way, to save us time, money and headaches as we did so. As part of his “dictation,” he had decided to sell his car to my husband and me to use as a car for our youngest son. I hesitated to bring him the title to sign over, thinking it was barbaric on my part and so, I reiterated that if he didn’t want to do it, it was okay.

He quietly reached for the title, reached for the pen in my hand, and shakily signed the title without any hesitation. When I wondered if he was really coherent enough (from all of the painkillers) to make such a decision, he quickly asked, “Did you find the folder in my office with all of the information about the car?” I nodded and then he drifted off to sleep again. Then I shook my head—only my brother would think to ask about whether or not I had found the folder with every auto-related transaction neatly and orderly filed, along with instruction manuals and warranties for said car. His question was my confirmation that he knew exactly what he was doing.

As friend after friend called to check on him (He asked for no visitors.), I was greeted by loud, never-ending sobs at the other end of the phone. But, I wasn’t surprised. What my brother had done for my youngest son was just one of many examples of what he did for others on a regular basis in his life.

A few days later, his tongue swollen, he barely whispered, “I’m trying to do this fast.” My brother and I reassured him he was “doing it” just fine. He nodded his head. A few days after that, his gaze no longer showed that he recognized my brother and me. But yet, he kept looking at us with his enormous blue eyes. One night as he stared at me with those eyes, I managed to eke out, “If you want to go, it’s okay. We will be okay. Just go towards the light, or the angels you see, or Mom and Dad, and go. We’ll be all right.” I nearly choked on the words, but knew, based on watching my dad die, that those might be the words he needed to end his suffering. What happened next scared the tar out of my brother and me. He didn’t take a breath for another 10 seconds. How do I know? I counted. It scared me that much. He kept doing that and my brother reiterated what I had said. But, even though we lingered by his bedside for quite a while, he kept breathing just enough to keep himself alive. We finally told him good night and left.

The next day the phone rang at my brother’s house around noon. My oldest brother answered it and I could tell it wasn’t good news. He hung up the phone and said, “He’s gone.”

The time from that moment until now, has been one long, continuous blur of cleaning out his house, sending back medical equipment that went unused, writing a eulogy of his life, meeting with family and friends, crying and settling his affairs. It often feels as if I am existing in a very surreal fog. The fog will, hopefully, clear after this coming Monday when my brother closes on our brother’s home. But, having walked down this path too many times in recent years, I know it probably won’t. It may cease and desist for a few moments or even days or even weeks, but it will still be there. For a long time.

And that’s what made it difficult to write for the past few months. And why, even though I have missed you, dear readers, I still find it difficult. So, I hope you will allow me to “wallow” in the fog for a little while–once again, doing my “self-therapy” through this blog. You are most likely going to hear about the facts regarding esophageal cancer and other cancers that have an awful prognosis for its victims and why.

You are going to hear about the funny moments (Because my family handles stress best by poking fun at it!) and yes, there were plenty of those. And if requested (and only if requested through your comments below), my eulogy, in its entirety. I’ve done three now, so I’m starting to become an expert on writing and delivering them (Some family members have already booked me for theirs….I guess that means I’m good at it???). Can you put “professional eulogist” on a resume??? Hmmm…

But, have no fear, my normal brand of insanity and silliness will be back before long. Because…there is still joy and blessing in my life. I love you, big brother! See you on “the flip side.”

Friday’s Post: We’re still losing this war…

You might also like: So, Where Are My Posts?; Lessons Learned from Heart Attacks 3 & 4; and A Real Scare

30
May

Slow Reader Thursday: A Grace Disguised

stone cross

I have a rather large pile of books in my office waiting on me to read them for this blog post each week and I have to admit that I tend to just grab one from the pile when I’m finished with the previous book. For some odd reason (I prefer to think of it as divine.) I have managed to choose two books back-to-back that focus on loss and death. Last week I reviewed Tuesdays with Morrie which discussed the dying process of Morris Schwartz, a man with ALS. This week I turned to A Grace Disguised by Jerry Sittser. While Jerry Sittser did not go through the dying process himself, he probably wished he could after suffering the loss of three family members all on one night.

Jerry Sittser was forced to look after three small children on his own and to figure out what to make of the great loss he faced. While these losses attracted a great deal of attention, Sittser felt alone in his grief and the heavy responsibilities that befell him. However, rather than choosing to ignore or hide from his pain, he chose to dive head first into it and work towards making sense of it. He managed to succeed and to raise those three children successfully. He chose to ask God for help, even when he wasn’t sure He wanted to believe in a God who would take three people from him so haphazardly.

Sittser is quick to say that he blew it a great deal of the time, but his willingness to explore his thoughts, foibles and grief led to the writing of this book and led to him being able to help others who were facing their own versions of horror and grief.

He explains things far better than I ever could–here are a few examples:

1.”Catastrophic loss wreaks destruction like a massive flood. It is unrelenting, unforgiving, and uncontrollable, brutally erosive to body, mind, and spirit.”

2.”It is therefore not true that we become less through loss–unless we allow the loss to make us less, grinding our soul down until there is nothing left but an external self entirely under the control of circumstances. Loss can also make us more. In the darkness we can still find the light. In death we can also find life. It depends on the choices we make.”

3. “Many people form addictions after they experience loss. Loss disrupts and destroys the orderliness and familiarity of their world. They feel such desperation and disorientation in the face of this obliteration of order that they go berserk on binges. They saturate their senses with anything that will satisfy them in the moment because they cannot bear to think about the long-term consequences of loss….So they drink too much alcohol, go on a sexual rampage, eat constantly or spend their money carelessly. In so doing, they hold suffering at a distance.”

Loss and grief are inevitable parts of living on planet Earth. We can either choose to embrace it and delve into its horrible depths and learn from it or be destroyed by it. Sittser makes a convincing, compassionate and human case for doing the former. Every one of us should read this book and embrace, yes embrace, the journey of grief and loss, for reaching the “destination” is well worth the journey.

Point to Ponder Challenge: What losses are going on in your life right now? Are you running from them? Are you diving into their darkness and letting yourself grieve fully? If not, schedule some time today to think about these losses and allow yourself to fully feel the weight of its sadness, unfairness, and waste. What can you learn from this nastiness? Do you need help from someone you trust? Do you need professional assistance? If so, take one step out of the darkness right now and find that person. Make a date with that person to talk over how you’re feeling. You’re worth it!